Data Portal

data forming a Matrix-like tunnel

The Center for Health Equity Research has a wealth of data from its research and evaluation projects, and some of these data may be accessed by researchers students, and community-based organizations by completing the request below.

 

Access data or learn about some of the CHER datasets:

Funded by The California Endowment (TCE) through Building Healthy Communities (BHC), Long Beach (Long Beach Forward), the (CSULB) Center for Health Equity Research (CHER) developed the Resident Power Survey in 2012 with input from residents and BHC Long Beach partner organizations, and by turning to existing literature and previous efforts to measure resident power or similar concepts (e.g., community empowerment, capacity building). The purpose of the survey was to examine changes in resident power as part of the evaluation of BHC Long Beach. The survey contained context-specific questions to assess the initiative’s influence on resident power building and core questions that could be used to measure the effectiveness of health initiatives or programs in other settings. The Resident Power Survey assessed how involvement with BHC Long Beach contributed to changes in residents’ leadership skills and perception of their ability to influence change. The survey was developed to fill a gap in in TCE’s efforts to evaluate resident engagement by hearing directly from residents.

Specifically, CHER identified three elements of resident power that were most relevant to the initiative’s resident power building activities: 1) Engagement (the perceived level of involvement; satisfaction; value of contribution; and connectedness), 2) Leadership (the ability to access and utilize information; challenge authority; engage in strategic thinking and planning; and knowledge of and access to leaders and decision-makers), and 3) Influence (decision making; successful campaigns; and life improvements). Respondents indicated their level of agreement to items related to each element of resident power using a 5-point Likert Scale, ranging from strongly agree to strongly disagree. The final version of the survey consisted of 128 items and was administered for the first time in 2013 to youth and adult residents.

A large majority of participants completed surveys online using home computers or handheld tablets that the evaluation team provided. Participants completed surveys individually or in a group setting at an organizational partner meeting with interpretation, if language assistance was needed. In subsequent data collection waves, in 2015 and 2018, the survey was shortened by removing items that produced redundant data, and the age eligibility was modified to 18 years and older to avoid overburdening youth who were already involved in a study on youth leadership. The final survey consisted of 70 items and took approximately 30 to 45 minutes to complete. A total of 440 surveys were collected.

Click HERE to explore selected BHCLB Resident Power Survey results.

PPOWER2 (Peer Promotion of Wellness and Enhanced Linkage to Resources Project) was funded by the University of California Tobacco-Related Disease Research Program. This study involved the development and testing of tobacco/nicotine and cannabis intervention components tailored to young Black men who report no use or infrequent use of tobacco/nicotine and cannabis-related products as a contribution to the efforts to reduce tobacco-related disease disparities within the Black community. Over two hundred (n=203) young Black men from the greater Long Beach and Los Angeles areas were enrolled into the two-session, peer-led intervention.

Longitudinal data were collected at three time points: baseline, three, and six months post baseline. Along with socio-demographic characteristics, the instrument included published and unpublished assessments of sexual and substance use behaviors, psychological state, social experiences, and attitudes and intentions toward nicotine and cannabis use.

The PPPOWER2 baseline assessment includes approximately 700 items along with metadata, calculated scores, and related information and includes the following sections:

  • Tobacco/Marijuana Modality Inventory
  • Assist-M and Marijuana Use Profile
  • Tobacco Use Profile
  • AUDIT and Alcohol Use Profile
  • ASSIST-O and Other Substances use profile
  • Lifetime Sexual History
  • Current Sexual Context
  • Last Sexual Encounter
  • Sexual Behaviors and Substances Use
  • Safer Sex Behavior Questionnaire (SSBQ) asked for both 'Main' and 'Other' Partners
  • Sexual risk behavior assessment
  • COVID-19 experiences and outcomes
  • Civil Justices Protests experiences and outcomes
  • PrEP and PEP experiences and outcomes
  • Healthcare access and utilization
  • Cannabis Expectancy Questionnaire for Men who have Sex with Men(CEQ-MSM)
  • Cannabis Refusal Self-Efficacy Questionnaire CRESQ)
  • Perceived Smoking Susceptibility Scale (PSmSS)
  • Brief mental health history
  • Perceived Stress Scale (PSS)
  • CES-D10 Depression Scale
  • Social Anxiety Scale for Adolescents (SASA)
  • Perceived discrimination scales
  • Sensation Seeking Personality Traits using the Brief Sensation Seeking Scale (BSSS)
  • Demographic Information Including Ethos Typology to Assess homelessness

Items are drawn from the following sources. Note that some instruments have been adapted or abbreviated for use in this project.

Tobacco and Marijuana Modality Inventory
Publisher: N/A
Summary: 36 Items detailing previous modes of use for tobacco and nicotine (cigarette, cigar, vape, etc.)

National Minority SA/HIV Prevention Initiative-Adult Questionnaire Rev.2016

OMB No.: 0930-0298

Developed to address program needs and reporting requirements for Minority AIDS Initiative grantees

Alcohol, Smoking and Substance Involvement Screening Test Version 3 - Cannabis Scale

Assesses symptoms of problem marijuana use

Alcohol, Smoking and Substance Involvement Screening Test Version 3 - Other Drug Scale

Assesses symptoms of problem use of drugs other than alcohol or marijuana

The Alcohol Use Disorders Identification Test

Assesses symptoms of problem alcohol use

Substance Use Profile

N/A

Quantitative assessment of marijuana, tobacco, Alcohol, and other drug use history

Lifetime Sexual History, Current Sexual Context, Last Sexual Encounter, &
Sexual Behaviors and Substances Use

N/A

Items developed by CHER to describe recent and lifetime sexual behavior

Cannabis Expectancy Questionnaire for Men who have Sex with Men

Mullens AB; Young RM; Dunne M; Norton G. The Cannabis Expectancy Questionnaire for Men who have Sex with Men (CEQ-MSM): a measure of substance-related beliefs. Addictive Behaviors 2010;35(6):616-19.

Administered to men who reported marijuana use in the past 30 days.

Cannabis Refusal Self-Efficacy Questionnaire (Young, 2012)

https://doi.org/10.1016/j.drugalcdep.2012.02.018

All respondents

Susceptibility to Smoking

https://cancercontrol.cancer.gov/brp/tcrb/measures-guide/susceptibility-smoking

4 item perception scale. Administered to all respondents

Brief report of mental health diagnosis/treatment

4 items

Perceived Stress Scale

https://www.phenxtoolkit.org/protocols/view/180801

10 items

Center for Epidemiologic Studies Depression Scale

Björgvinsson, T., Kertz, S.J., Bigda-Peyton, J.S., McCoy, K.L., Aderka, I.M. (2013). Psychometric properties of the CES-D-10 in a psychiatric sample. Assessment, 20, 429-436.
Miller, W.C., Anton, H.A., Townson, A. F. (2008). Measurement properties of the CESD scale among individuals with spinal cord injury. Spinal Cord, 46, 287-292.
Radloff, L. S. (1977). CES-D scale: A self report depression scale for research in the general populations. Applied Psychological Measurement,1, 385-401.

The Multidimensional Scale of Perceived Social Support (Zimmet, 1988)

http://www.yorku.ca/rokada/psyctest/socsupp.pdf

Dropped

Social Anxiety Scale for Adolescents

Myers MG, Stein MB, Aarons GA. Cross validation of the Social Anxiety Scale for Adolescents in a high school sample. J Anxiety Disord. 2002;16(2):221-32. doi: 10.1016/s0887-6185(02)00098-1. PMID: 12194546.

Three subscales used, Fear of Negative Evaluation-6 items, Novel Social Situation Fears-4 items, and General Social Situation Fears- 3 items

Everyday Discrimination Scale

Williams, D.R., Yu, Y., Jackson, J.S., and Anderson, N.B. "Racial Differences in Physical and Mental Health: Socioeconomic Status, Stress, and Discrimination." Journal of Health Psychology. 1997; 2(3):335-351

10-item scale measuring experiences and sources of discrimination

Brief Fear of Negative Evaluation Scale Revised

Carleton RN, McCreary DR, Norton PJ, Asmundson GJ. Brief fear of negative evaluation scale-revised. Depress Anxiety. 2006;23(5):297-303. doi: 10.1002/da.20142. PMID: 16688736.

6 items selected and adapted

Single Item Racial Discrimination measure

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6197817/pdf/nihms962285.pdf

Single item addressing response to experiences of discrimination

Brief Sensation Seeking Scale (Hoyle, 2002)

https://www.sciencedirect.com/science/article/abs/pii/S0191886901000320

4-item assessment of sensation-seeking personality trait

Ethos Typology to assess homelessness

https://www.feantsa.org/download/en-16822651433655843804.pdf

5-item assessment of recent experiences of homelessness

Experiences related to the COVID-19 Pandemic

Experiences related to 2020-21 civil justice protests and unrest

PrEP and PEP experiences and outcomes

Health Information National Trends Survey (Tobacco Use section)
(HINTS 4 cycle 4?)

https://hints.cancer.gov/about-hints/learn-more-about-hints.aspx

The Community Wellness Program (CWP) is a 10-year project funded by the California Department of Public Health Office of Health Equity. One of 35 California Reducing Disparities Projects, the CWP aims to reduce mental health disparities among Cambodians in the greater Long Beach and Santa Ana area through use of community-defined practices. The CWP fills a gap in service delivery for Cambodian immigrants and refugees, who continue to remain disconnected from mainstream mental health services due to a myriad of barriers, including, but not limited to, mental health stigma, limited English proficiency, and cultural incongruent services. The CWP offers in-language and culturally-appropriate services delivered by bicultural and bilingual community health workers (CHWs).

CHER served as the evaluator for this collaborative program. The CWP evaluation follows a delayed intervention quasi-experimental design to assess program effectiveness in promoting mental wellness among program participants. Evaluation activities include quantitative (i.e., pre- and post-surveys) data collection during Years 2-9 of the 10-year project. Participants completed baseline surveys and a follow-up survey at 3, 6, and 9 months. Surveys are paper-based, available in English and Khmer, and staff-administered one-on-one or self-administered in a group setting.

The sample size for the first 5 years was 400 participants across four partner agencies. The extension of the project through year 10 will include xx additional participants. Outcome variables are listed below:

  • Outcome Variables:
  • Mental health myths
  • Mental health stigma
  • Feeling less alone
  • Greater connection with others
  • Increased positive self-perception
  • Dietary practices
  • Sleep quality
  • Overall physical health
  • Physical activity level
  • Overall mental health
  • Trauma symptoms - Harvard Trauma Questionnaire that ask about symptoms of trauma using a 4-point scale.

animated data connections

If you or your organization would like to request access to CHER's datasets, please read and complete the Data Use Agreement and return it to CSULB-CHER@csulb.edu .